Wednesday, June 6, 2012

June 2, 2012


Ray was released yesterday about 2:30 from DUKE, whoo hoo! He will repeat lab work next week and follow up with Duke the 12th. The liver doctor will see him AND they would like him to see a kidney specialist JUST to make sure that the kidneys are ok since his number were elevated. His "BUN" (body hydration) were better, potassium down and kidney numbers were slowly falling back down.
His MELD is at a 31. WAY up from his orginal listing of 23. They are able to keep that MELD listed with UNOS/Caolina Donor until next Thursday afternoon, then they must update it (it probably will fall some but it will be unusual for it to fall back down to 23). This does mean his liver is sicker.
They stopped some medications and he now has to MONITOR his potassium in foods as well as continue to watch his sodium intake. WHAT in the world will I feed this man! We were thankful to get to go to Jackson's last game last night, THEY WON and his first tournment game this AM.
We got home about 5:30 yesterday and no sooner then we were coming off the bypass from my parents the phone rang and it was Duke. We were on "stand by" for a B liver in the region (5 states) but not in NC. They would call back about 11pm to say yes or no if the liver was coming to Duke. It probably was not coming to Duke but they had to alert Ray just in case it did-hense the "standby". The liver did not.
About 2:30 today we got ANOTHER call from Duke. We are on standby again. The donor will go into surgery about 5pm and we should know a yes or no around 7pm. IF the state that the donor is in has a B liver needed close to the hospital then that state/area will get it. If they do not have a need for a B liver or if the surgeons there don't like the liver but Duke does then Duke will get it, meaning Ray. Ray is #1 on the B liver list at Duke and after 2 standby phone calls in 2 days he and I are "assuming" that he must be the #1 B liver in the 5 state region. The whole "region" stuff is NEW to us...we didn't deal with that last go round.
I am praying and hoping that if this liver is not the one, then at least by next Thursday when the MELD has to change that he will just have a new liver.
Just continue to do what you are doing, PRAY, PRAY, PRAY...God is definely letting me know the past two days "see haven't forgotten about you...just looking for the PERFECT one..." I think he is preparing us and saying get ready.
So I will update again as we know something. Jackson has a game at 7:00pm-tournment weekend. I will email again when we get home either way-yes or no.
Last night when it was no, please know Ray and I were FINE. Are we ready, "Yes" but we know when it is right it will be right.  

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